Recorded on Monday, January 15, 2024
Supporting High-Quality Patient Engagement in Research: Planning, Implementation and Evaluation
Featured: Laura Tripp, Vicky Forster and Perri Tutelman
The potential benefits of including patients and caregivers throughout the research process are now well-established, and a growing number of research organizations and funding bodies either encourage or require patient involvement. Yet this collaboration isn’t always meaningful or valuable for patients or researchers. In this webinar, three leaders in the field of patient engagement will discuss key strategies and tools that can foster and sustain high-quality patient engagement in research.
Panelists addressed questions such as:
- What makes an engagement meaningful and worthwhile for patient partners?
- How can research organizations support and promote high-quality engagement?
- How can researchers plan for and implement high-quality patient engagement?
- What are some key lessons learned from partnering with patients in research?
- How can evaluation support high-quality patient engagement in research?
- What evaluation tools are available, and how are they evolving to meet emerging engagement needs and priorities?
Panelists:
Julia Abelson
Dr. Abelson is a Professor in the Department of Health Research Methods, Evidence, and Impact at McMaster University, a member of the Centre for Health Economics and Policy Analysis (CHEPA) and lead of the Public and Patient Engagement Collaborative. Throughout her career, Dr. Abelson’s research program has been guided by a long-standing interest in how the public interacts with health systems as patients, community members, voters, and taxpayers. These interests have provided the foundation for numerous research studies focused on the design and evaluation of processes for engaging the public and patients in health system decision-making. Through her research, she has developed productive and long-standing partnerships with a wide range of policymakers and health system managers at the provincial and regional governance levels across the country and is regularly invited to advise policy decision-makers and health system managers on the design, implementation, and evaluation of public engagement processes.
Vicky Forster
Dr. Victoria (Vicky) Forster is the Patient and Community Engagement Lead at Women’s College Hospital in Toronto. A cancer biologist by training, she completed a postdoctoral position at The Hospital for Sick Children in Toronto. Her research experience involves various pediatric cancer research topics and survivorship projects. She is also a keen science communicator and was named on the Forbes 30 Under 30 Europe list in the Science and Healthcare category. As a freelance science writer, Dr. Forster has contributed to publications such as The Times and Forbes Health. As a prolific public speaker, she has given talks on survivorship and patient engagement in research to organizations such as TEDGlobal, the Canadian Institutes for Health Research (CIHR), and the Society of Neuro-oncology. A childhood cancer survivor herself, Dr. Forster combines all of these skills to design and build bridges between researchers and patient advocacy communities.
Perri Tutelman
Dr. Tutelman is a Postdoctoral Fellow in the Departments of Oncology and Psychology at the University of Calgary. Her research expertise is centered at the intersection of psychosocial oncology, pain, and mental health. Her work has been recognized nationally and internationally, including by the World Health Organization as evidence on the burden of cancer-related chronic pain in children. As a clinician-scientist, Dr. Tutelman also provides clinical care to children, adolescents, and young adults with cancer through Cancer Care Alberta. Dr. Tutelman is a leader in patient engagement in research. She works closely with patient partners to co-design research that addresses what matters most to patients and their families. Dr. Tutelman is currently co-leading a James Lind Alliance Priority Setting Partnership to establish the Top 10 research priorities for Adolescent and Young Adult Cancer in Canada. She was a 2021 recipient of the inaugural Research Impact Canada Engaged Scholarship Award.
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- $15 to non-members
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